QUIRKINESS has been added to the mix of this year’s Cystic Fibrosis Great Escape Rally, which usually attracts a solid contingent of Leeton drivers.
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This year there will still be Leeton residents taking part, but long-time rallygoers Craig and Colleen Willis are unable to attend the event, which kicks off this weekend.
“Sadly this year, we have had a clash of events and, while out of our control, our passion to support CF continues,” Mr Willis said.
“However, (rallygoers will) not be travelling alone as we will be sending silhouettes of Colleen and I along for the journey to keep a close eye on the game.”
The Willis’ are sending along their good friends Caz Heim and Gus Clements in their place.
Michael and Helen Collins from Leeton will again be hitting the road to take part, as well as Grant and Chrissy Willis.
The rally starts from Windsor in NSW and will make its way to Bribie Island over 10 days.
In good news for Leeton’s fundraising efforts, the Calos Riders Club has given a $1000 donation to the cystic fibrosis cause.
All money raised as part of the rally goes towards helping find a cure for the disease.
Calos member George Nardi said the group was happy to help out.
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“While our primary goal is to still raise awareness and funds for mental health, sometimes we do have extra left to give back to our community,” he said.
“We’ve chosen to support cystic fibrosis because it is a great cause.
“We’re happy to be able to help and give back when we can.”
As the rally winds through towns and back roads again in 2018, the reason behind the mission is never lost.
Mr Willis said the Leeton crew continued to have solid support.
“The money raised by the entrants provide vital funding for the running of the National Data Registry in which every person who has CF is registered with,” he said.
“The registry uses the data collected from every person with CF for the purpose of finding a cure for this life threatening disease.
“In addition to finding a cure, we have campaigned extensively over the past three years with the federal government to provide people with CF, who have the double delta F508 defective gene, to have access to Orkambi under the PABC scheme.
“Prior to Orkambi being available to sufferers of CF, this course of drugs was available at a cost of up to $300,000.
“Now that it is available under the PABC scheme, this will now be available at the standard cost of a prescription – which is great news.”
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